I am learning what the NICU roller coaster is all about. Matt and I usually visit her twice a day (in morning and evening) -- of course, I would love to spend all day with her if I could but I am not allowed to drive yet so I am dependent on everyone else's schedule for another week. But for example: we left this morning being told Merritt would have the tube from her mouth removed and she would try a few ml's of breast milk. So we go back tonight expecting to hear how it went........disappointment. Not on Merritt's part though. Her tube is still in her mouth and they never got the "order" from the higher end to ok feeds. Ugh. She told me herself that she is hungry and wants MILK!!!! Soooooo frustrating.
She loves to be held and loved on! Such a girl. She doesn't care for the nurses very much - for good reason. There are definitely good nurses and just ok nurses. She has had a different one every day that she's been there so I can't remember any of their names yet. But I can't complain -- Merritt is doing so well that we will take what we can get - and be happy! Every day she is a "tube" or a "line" less, or improved in some other way. Just amazing.
I am ready for her to come home! Matt is reminding me to have patience.... and reminds me that we were expecting to be in there weeks to months....so to be in less than a month is a miracle. Please join me in praying for Merritt to tolerate the feeds now. With so much pressure on the inside and she's never had anything on her stomach (even the stomach acid gets suctioned out) she might vomit or have intense reflux. Hopefully we will find out tomorrow how she does - and then if all goes well, I might get to try nursing her. Wouldn't that be something! :)
"May He grant you according to your heart's desire, and fulfill all your purpose. We will rejoice in your salvation, and in the name of our God we will set up our banners!" Psalm 20:4-5
King Waffle
2 months ago
1 comment:
LOVE seeing her eyes open!!! Eyes open=hungry!!! Don't they know that!!?? LOL
Post a Comment