Saturday, November 5, 2011

Guttate Psoriasis

My name is Carrie.  And I have guttate psoriasis. 

ha!  I have to attempt to crack jokes because there is nothing funny about it.  And I'm sure you've never heard of it, right? 

I'll give you my personal history related to this subject (and I'll try to make it the short version).  The day after my freshman year of college, I came home and decided to sunbathe! I wanted to relax and just enjoy the day basking in the sun! The next morning I woke up with a few small red spots on my leg.  The next day they were the size of quarters.  By the end of the week there were so many spots they all ran together and covered my entire torso and the majority of my arms and legs.  I spent the entire summer wearing long sleeves and pants.  Went as far as to think I was allergic to the sun.  I went to 2 dermatologists and no one could tell me what it was or how to treat it.  No cream worked.  The first biopsy showed "yeast" in the skin. (fyi, there's always yeast on your skin).  So we tried anti-yeast/anti-fungal medications.  Come to find out I'm deathly allergic to antifungals.  Broke out in Stevens-Johnson Syndrome which is a whole other post in itself.  I wrote my senior pharmacy paper on SJS.  Second biopsy finally showed Guttate Psoriasis.  You can Google it or click on the link.  I won't give you a term paper on it. 

So I lived with it for 4 years (it had progressed to chronic plaque psoriasis).  Looking back, it was the darkest days I've ever had.  I was severely depressed.  I thought God was punishing me for everything I deserved..and I deserved much worse than psoriasis.  Was I mad at God?  Absolutely.  I thought I wasn't worth anything because of the way I looked.  I mean really, what freshman girl in college do you know that doesn't put alot of weight on the way you look? What guy would ever look at someone covered in plaque psoriasis?  What person would want to be friends with me if they knew what I looked like underneath it all?  yes...severely depressed.  Cried every night for years.  Rock.Bottom.

God taught me a HUGE lesson through it all.  Obviously I learned a person's worth is not what you look like.  I realized I was one superficial brat (words from my own grandmother-ha!) I was putting so much pressure on myself to look right, act right, etc.  Course you couldn't tell me that while I was in the valley.  I went to pharmacy school due to my allergic reaction curiosity.  My first year I came upon a compounding pharmacist.  He said "when you don't have any other option and you're at the end of your rope...come to me."  Course, he was speaking of compounding medicine.  So I met with him, he researched psoriasis... me, him, and his herbalist came up with a plan that you wouldn't believe if I told you.  I couldn't have made up that story - it was so crazy.  Long story short = I took TONS of vitamins and herbs and it took a month for my psoriasis to go into remission. 

I've been in remission until this week.  10 years free.  It was one of those things I never took for granted.  There wasn't a day I didn't remember those days, but it was also 'out of sight out of mind.'    We went to Disney World and I caught an upper respiratory infection (for all you other psoriasis sufferers you know this is a trigger).  I started taking a few medicines and woke up with a rash.  Thought I was just allergic to something - perhaps laundry detergent?  Maybe my Starbucks latte?  ;)  

So its back.  Guess I just wanted to warn everyone that if you see me covered in long sleeves and jeans for the next few years.  At least its winter now.  I have it in my hair and on my face this time - which is different than before.  Can't cover that up.  Going to try really hard for my kids' sake not to get too down about it...  but I definitely have my moments.  Maybe you're thinking it can't be that bad, right?  No one understands until you've experienced it.  I would post pics but it grosses most people out.  The good news is I won't spend months trying creams that don't work, or weeks trying to find out what it is, or getting my hopes up.  There's 10 years worth of progress in the study of it.  I'm interested in trying the diet for inflammation (lots of fish, no dairy or red meat.)  And I'm always up for trying the new medications approved for psoriasis.  I had a bit of a meltdown this morning.  Matt told me it could be worse.. in the midst of my crying I asked him 'how?'.  He said a friend of his (another doctor) had to tell a 35 year old woman that she had stage 4 metastatic liver cancer yesterday. 

Am I mad at God this time? No.  Do I think He's punishing me? No. He gives us trials to test our faith.  I am reminded that God has His own plan - and it is NOT my plan. I have control over nothing.  I know that it CAN go away on its own.  It might take weeks or years.  But I also have to accept that it may never go away.  My heart goes out to all the sufferers of inflammatory diseases (not just skin related). 

Psalm 55.  "Fear and trembling have beset me; horror has overwhelmed me. (5)... As for me, I call to God, and the LORD saves me. Evening, morning, and noon I cry out in distress, and he hears my voice.  He rescues me unharmed from the battle waged against me...(16-18)  Cast your cares on the LORD and he will sustain you; he will never let the righteous be shaken."

Jeremiah 29:11-13  "For I know the plans I have for you," declares the LORD, "plans to prosper you and not harm you, plans to give you hope and a future. Then you will call on me and come and pray to me, and I will listen to you.  You will seek me and find me when you seek me with all your heart." 

11 comments:

Carly Winborne said...

i'm proud of you for your gentle acceptance of it all. it's hard, i know it is. as you learn to adjust, you'll be stronger as a result.

rodniiwin said...

A number of treatment options can help in controlling the symptoms of scalp psoriasis. The treatment is aimed at relieving the signs and symptoms and controlling flare-ups. It includes the use of topical medications, medicated shampoos and phototherapy.
psoriasis free for life

Amy Limdsy said...

I too was a guttate sufferer. I got it at 33 due to a bout with strep throat. I tried everything known to man. Finally I came up on a study about tonsilictimies. After suffering for months I had my tonsils removed and I had a 2 week flare, then they faded away. I had tremendous amount of hypopigmentation that faded after about 9 months completely;))

Amy Limdsy said...

cyclosporine helps also, if u can tolerate elevated blood pressure

Andrea Kim said...

Aloe vera gel is very effective treatment for psoriasis. This gel forms a protective layer on broken skin, soothing inflammation and speeding the healing process. The purest and most effective source is the gel in the leaf of the plant.

kidsrecipesandorganisedchaos said...

Thank you for your post. My husband suffers guttate psoriasis, and I feel at a loss to help him. There's the anti inflammatory diet, there's the high alkaline diet, the autoimmune protocol, plus whatever the specialist suggests you do. We've tried numerous things but nothing seems to work. :(

Psoriasis Guttate said...

Really interesting blog and appreciate your encourage,faith, and trust.Psoriasis is a chronic diseases those recover through ayurvedic Treatment or herbs, booty etc. its a best way to get relief from psoriasis. our organization offers psoriasis ayurvedic treatment and many patients were happy and satisfied our Ayurvedic Treatment or Therapy. and wish for your happy and healthy life.

StrayKat Gear said...

I also have guttate psoriasis and have recently FOUND HELP. HONEY. You smear honey on the areas and let sit about 5 to 10 mins before getting in shower. ( i leave it on 5mins) I shower off and then soak in a WARM not hot bath for 30mins to an hour with baking soda and sea salt or epson salt. I also use apple cider vinagar with mother. (can get at GNC)
The honey acts as a all natural healing agent. It also takes the itch out.
Lastly, Triple Ginsa. This is an herbal supplement you can also get at GNC. It has 3 types of ginseng in 1 pill. Take one pill in morning and one at night until psoriasis disappears. I continue taking even after.
You will also need to eat healthy. Lots of fruits and veggies. And staying active is a MUST. I work out 3 times a week plus walk my dogs every other day.
Dont be overwhelmed by all this. Start with honey and baths and go from there. I was just SO MISERABLE that i tried everything and this all worked to completly clear my skin. I continue to soak in baths from time to time and still exercise.
I have tried precriptions from doctors with no results so heres my HELP if youve tried it all too. Really hope this helps someone. IT CAN BE HEALED. Guttate psoriasis is the only type of psoriasis that can.

Anonymous said...

UV lights will get rid of psoriasis. Either lay out in the sun or go to the tanning bed for quicker results. It might sound crazy but do the research on it and you will see that one of the treatments is UV lights. After you sit in the sun or tanning bed for a bit, the psoriasis will get very red the first day. The second day you will begin to notice it slowly disappearing. It will take quite a few visits but will eventually fade out completely. I don't know how or why it works but I was willing to try anything.

Sue King said...

Thank you for your blog. Had Guttate psoriasis 10 years ago after a strep infection. Mild case. Back with a vengeance now after another strep infection. 60 years old. Appreciate your comments. God bless you and your lovely family.

Gwen said...

I just got mine this year. I am very depressed. its amazing how depressing it is.... I got strep in Oct and was covered from head to toe. Almost got rid of it and got strep again in feb. Covered again from head to toe. its not leaving... its so frustrating. its so gross. its so depressing. I cry too. I am praying God will help me be stronger too.